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Researchers have developed PEDF-based eye drops that show promise in slowing retinal degeneration in mice with retinitis pigmentosa, potentially offering a non-invasive treatment option for preserving vision in the future.
Our community is informed and knowledgeable about current research projects into the cause(s) of and treatments for these conditions.
As people living with sight loss we are constantly looking for solutions to make our lives easier without too much effort or cost writes Jonathan Abro.
Genetic testing, usually via a blood sample, is used to try and identify which gene contains the fault that is causing an individual’s sight loss.
This page explains the different types of genetic tests: diagnostic testing, predictive testing, carrier testing and research testing
Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease
As a coalition of sight loss charities, we are calling on the Government to make the benefit system and employment support fit for purpose for blind and partially sighted people.
Steve has been volunteering for Retina UK since its formation in 1976 and has been a part of the Helpline team since the early 1980s.. He remembers very well a caller named Khadeja, who called the Helpline multiple times, following her diagnosis with RP in 1999.
A round-up of the latest research into inherited retinal conditions - February 2024.
