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Including a gift to Retina UK in your Will is an incredibly special way to help our vital work continue into the future.

The aim of these pages is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.

Inherited progressive sight loss is caused by a range of rare genetic conditions. We specialise in those which affect the retina.

These frequently asked questions should provide a response for most of the queries you might raise.

Retina UK aims not only to progress research along established threads, but to stimulate new thinking, encourage innovative approaches and nurture original ideas.

Making yourself aware of the what you are entitled to, and understanding the diagnosis pathway for inherited sight loss, will put you in a stronger position to seek better support.

Retina UK recently launched an innovative course, Discover Wellbeing, to help those living with inherited sight loss develop an awareness of emotional wellbeing and practical skills to adapt to life’s ups and downs.

• Webinar
• Audio
• Video

Dr Rachel Taylor is part of the UK Inherited Retinal Dystrophy Consortium (UKIRDC) team at the University of Manchester.

• Case study - research
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Hajrah Sarkar is a PhD student whose project is funded by Retina UK.

• Case study - research
• Written

Jenny Dewing is a postdoctoral researcher working on a Retina UK-funded project with Dr Arjuna Ratnayaka at the University of Southampton.

• Case study - research
• Written