Search

Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.

The collective partnership of eight of the leading charities in the sight loss sector, known for the last three years as the VI Charity Sector Partnership, has re-launched under a new identity of the ‘Vision Partnership’ with a re-invigorated purpose and new strategic focus.

• News

Sepul Bio begins clinical trial of ultevursen for USH2A-associated RP

• News
• Retinitis pigmentosa

Research determines that taking high dose vitamin A supplements does not slow vision loss in people with retinitis pigmentosa (RP).

• News

It’s time to reflect, celebrate and look to the future... and you’re invited. Join us for an unforgettable evening as we celebrate the culmination of our 50th anniversary year.

• Fundraising Events
• London

Did you join either of our Conferences this year? You can read about them inside this edition of Look Forward. We’ve had some fantastic feedback from our delegates so if you weren’t able to attend, you can watch or listen to the recordings from the day on our website.

• Look Forward
• Audio
• Written

This October, join Retina UK on Halloween weekend (28 and 29 October 2023) and face your fears by taking on a Halloween skydive at various airfields around the UK.

• Extreme Challenges
• Various

This November, join Retina UK on Bonfire weekend (4 and 5 November 2023) and face your fears by taking on a Bonfire skydive at various airfields around the UK.

• Extreme Challenges
• Various

Biotechnology company ProQR has announced that two of its RNA therapy development programmes for inherited sight loss are being acquired by Laboratoires Théa, a company specialising in eye care products.

• News

Making yourself aware of the what you are entitled to, and understanding the diagnosis pathway for inherited sight loss, will put you in a stronger position to seek better support.