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Since the publication of this newsletter our founder and honorary president Lynda Cantor MBE has passed away. We are all deeply saddened by this news.

• Look Forward
• Audio
• Written

We always aim to provide a high standard of service to our community. If you are unhappy with any of our services it is important that you let us know.

The project aims to develop a cost effective method of examining the entire ABCA4 gene to look for variations that might cause disease.

• Case study - research
• Written

In February 2022, ProQR announced a disappointing outcome for their phase 2/3 trial of sepofarsen for Leber congenital amaurosis type 10 (LCA10).

• News
• Usher syndrome

It was previously believed that female carriers of X-linked inherited retinal diseases (IRDs) like X-linked retinitis pigmentosa (RP and Choroideremia) remained unaffected by sight loss.

• News
• Choroideremia
• Retinitis pigmentosa

During our 50th anniversary year, Retina UK will be the focus of a BBC Lifeline Appeal on Sunday 16 November 2025.

We can provide all the support your organisation needs to work with us; from ideas to practical support and materials. The Retina UK team will help your contribution be as fun and rewarding as possible.

Find out more about Martyn Osborne's big win on the Retina UK Lottery and why he would recommend playing.

• News

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