Search

Alstrom syndrome is an inherited condition which affects many body systems.

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

• Look Forward
• Audio
• Written

Usher syndrome is an inherited condition that affects both hearing and vision.

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students. We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

• Look Forward
• Audio
• Written

As part of Retina UK's birthday celebrations, we would love for you to face your fears by taking on a skydive for us!

• Extreme Challenges
• Various

These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.

The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Stickler syndrome is a genetic connective tissue disorder.

You can download the last three years’ Trustees’ Annual Report & Accounts. They are also available on the Charity Commission website.

• Annual Report
• Written

X-linked retinoschisis (XLRS) is an inherited condition that causes early loss of mainly central vision in males.