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Could you take on Mount Kilimanjaro for #TeamRetinaUK in Tanzania in October 2026?

• Walks & Treks
• United Kingdom

Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

• Look Forward
• Audio
• Written

During our 50th anniversary year, double your donations to Retina UK for one week only - at no extra cost to you!

We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022 and in 2025. These are the findings.

• Audio
• Written

Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.

These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.

Join the Retina UK membership today! Anyone is welcome to join; whether you are living with a sight loss condition yourself, related to somebody who is, or if you are working as a sight loss professional.

Familial Exudative Vitreoretinopathy (FEVR) is an inherited disorder that causes progressive vision loss.

X-linked retinoschisis (XLRS) is an inherited condition that causes early loss of mainly central vision in males.