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Martin's son was diagnosed with Stargardt’s at a young age which has led Martin to take a close interest in the progress of research into Retinal disease.

• Trustee
• Written

Bhavini was diagnosed with RP in 1997 aged 17. The consultant who confirmed her diagnosis told her that “there was no cure or treatment and she should prepare to go blind".

• Case study - community
• Written

Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

• Case study - community
• Written

Autosomal dominant inheritance means that the faulty gene is on an autosome (any chromosome other than the sex chromosomes) and that only one faulty copy is needed to cause sight loss.

Simon talks about his experience of genetic testing and counselling.

• Case study - community
• Video

Our Board of Trustees is responsible for the strategic management of the organisation and delivery of our charitable objectives.

Our Scientific & Medical Advisory Board (SMAB) advises our Board of Trustees in order that they can approve grants for research projects.

Retina UK has a number of online support resources which we offer via social media.