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High quality information on genetic testing and counselling for families affected by inherited sight loss is now available in one place thanks to the launch of an innovative new website, Unlock Genetics.
Inside this edition, register now for our AI webinar on 7 December with Dr Nikolas Pontikos.
The latest webinar from Retina UK.
Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.
Thank you to all those who completed our recent Sight Loss Survey – almost 700 of you took the time to share your experiences.
If you support someone with inherited sight loss and they need additional support or information, you can make a referral to one or more of our dedicated services.
A huge thank you to everyone who completed our 2025 sight loss survey. This year we received over 600 responses. It follows similar surveys in 2019 and 2022 which led directly to the introduction of our Unlock Genetics and Discover Wellbeing resources, as well as shaping our work with the professional community who support people with inherited sight loss.
Thursday 20 November 2025, 7.00pm - 8.00pm - via Zoom - Come and join us for our latest meeting where we will be sharing some useful tech that was showcased at this years London Sight Village being held at the ILEC Conference Centre.
Making yourself aware of the what you are entitled to, and understanding the diagnosis pathway for inherited sight loss, will put you in a stronger position to seek better support.
Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.
