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Information and support services

Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.

Make a referral along with a handshake

Make a referral

If you support someone with inherited sight loss and they need additional support or information, you can make a referral to one or more of our dedicated services.

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Types of inherited sight loss

Inherited progressive sight loss is caused by a range of rare genetic conditions. We specialise in those which affect the retina.

Retina UK Sight Loss Survey 2025 Findings from our survey of over 600 people living with inherited sight loss. June 2025

Every experience counts: Insights from our sight loss survey

A huge thank you to everyone who completed our 2025 sight loss survey. This year we received over 600 responses. It follows similar surveys in 2019 and 2022 which led directly to the introduction of our Unlock Genetics and Discover Wellbeing resources, as well as shaping our work with the professional community who support people with inherited sight loss.