Best disease
Best disease, also known as Best vitelliform macular dystrophy (BVMD), is is an inherited eye condition associated with progressive degeneration of the macula and is a form of juvenile macular dystrophy.
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Gyrate atrophy of the choroid and retina
Gyrate atrophy of the choroid and retina, shortened to gyrate atrophy, is an inherited disorder of protein metabolism characterised by progressive vision loss.
Bardet-Biedl syndrome (BBS)
Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.
Local peer support groups
Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.
Become a Retina UK member
Join the Retina UK membership today! Anyone is welcome to join; whether you are living with a sight loss condition yourself, related to somebody who is, or if you are working as a sight loss professional.
Doyne honeycomb dystrophy
Doyne honeycomb dystrophy is an inherited disorder which causes progressive sight loss.
Pattern dystrophy
Pattern dystrophy is an umbrella term for a group of retinal conditions. It is characterized by various patterns of pigment deposition within the macula.
Central areolar choroidal dystrophy (CACD)
Central Areolar Choroidal Dystrophy (CACD) is a rare inherited condition that affects the macula, the small area in the middle of the retina that is primarily responsible for our central vision.
RECORDING: Professionals’ Conference – 27 September 2024
A recording of the Retina UK Professionals' Conference on 27 September 2024. The Conference was held at the Pendulum Hotel in Manchester and online.
Joining the research effort
Many research studies could not take place without the participation of people living with inherited sight loss.