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Alstrom syndrome is an inherited condition which affects many body systems.

Usher syndrome is an inherited condition that affects both hearing and vision.

These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

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Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students.

We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

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The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Stickler syndrome is a genetic connective tissue disorder.

Gyrate atrophy of the choroid and retina, shortened to gyrate atrophy, is an inherited disorder of protein metabolism characterised by progressive vision loss.

Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.

Join the Retina UK membership today! Anyone is welcome to join; whether you are living with a sight loss condition yourself, related to somebody who is, or if you are working as a sight loss professional.