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A research project funded by Retina UK helped pave the way to a new gene therapy that has recently produced encouraging results in two young people with achromatopsia, a condition that causes complete colour-blindness and poor overall vision from birth.
Thank you to all those who completed our recent Sight Loss Survey – almost 700 of you took the time to share your experiences.
Autoimmune diseases are quite distinct from inherited retinal dystrophies.
This page explains the different types of genetic tests: diagnostic testing, predictive testing, carrier testing and research testing
Would you like to help shape Retina UK’s future? Do you want to ensure decision-makers understand the impact of inherited sight loss? If so we’d love to hear from you.
The Retina UK community is sometimes targeted by adverts online or in social media, offering invasive treatments for inherited sight loss.
After more than 10 years of service as Chair of the Board of Trustees, Don Grocott has retired.
High quality information on genetic testing and counselling for families affected by inherited sight loss is now available in one place thanks to the launch of an innovative new website, Unlock Genetics.
Tuesday 15 July 2025, 7.00pm - 8.00pm - via Zoom - Come and join us for our latest meeting where we are excited to be joined by our guest speaker Sam Seavey, assistive tech expert and the visionary behind The Blind Life YouTube channel.
If you could use the long bank holiday weekend to fundraise for Retina UK, we would love to hear from you!
