Trusts and Foundations
Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.
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How we can work together
We can provide all the support your organisation needs to work with us; from ideas to practical support and materials. The Retina UK team will help your contribution be as fun and rewarding as possible.
Involving our community
Our community is informed and knowledgeable about current research projects into the cause(s) of and treatments for these conditions.
For professionals
Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease
ProQR announces suspension of LCA10 and USH2A clinical trials
Biotechnology company ProQR has announced that its clinical trials of sepofarsen for Leber congenital amaurosis type 10 and ultevursen for USH2A-mediated retinitis pigmentosa will be wound down with immediate effect.
A genetic diagnosis for RP can give rise to unexpected surprises
James Birtley is a Retina UK supporter and volunteer who is living with retinitis pigmentosa. He is also a scientist with a particular interest in the structure of proteins, the complex molecules that form the building blocks of our bodies.
Manchester Local Peer Support Group
Thursday 17 July 2025, 7.00pm - 8.00pm - Via Zoom - Come and join Rachael and the group for their latest online meeting to hear from guest speaker Dawn Bridgehouse, a ROVI from the Manchester area.
Pancake Day Fundraising
Pancake Day or Shrove Tuesday, which in 2025 falls on Tuesday 4 March, could be a great opportunity to fundraise for Retina UK, whilst having fun and eating lots of yummy pancakes!
Women’s Peer Support Group
Thursday 3 July, 7.00pm - 8.30pm - via Zoom - Please come and join our new facilitators Danielle and Perm for our latest Women's Peer Support Group meet up to discuss how we can manage our mental and physical Wellbeing.