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Charities representing blind and partially sighted people are urging the UK Government to increase benefits in line with inflation rather than wages, when a decision is made at the end of the month.

• News

Saturday 28 June, 1.00pm - 7.00pm - In-person - Come and join Colin Hetherington and the group for their latest social event at the Tyneside Irish Centre in Newcastle.

• Local Peer Support Group

Rachael first noticed she had sight problems at the age of 15. She went to her local eye clinic, who said she had an astigmatism.

• Case study - community
• Written

Nanoscope Therapeutics has announced positive results from their two year randomised controlled phase 2b optogenetic therapy trial for late-stage retinitis pigmentosa (RP).

• News
• Retinitis pigmentosa

Saturday 24 May, 11.00am - 1.00pm - In-person - Please come and join Perm and the group for a fascinating day out at the West Midlands Police Museum.

• Local Peer Support Group

A recently published study has described numerous disease mechanisms that appear to be common across different types of inherited sight loss, suggesting that there is significant potential for drug treatments that could work regardless of the underlying causative gene.

• News
• Retinitis pigmentosa

As Luxturna reaches the clinic and other gene-specific therapies for inherited retinal disease get closer to the end of the development pipeline, it is becoming ever more important that affected families can access a genetic diagnosis, potentially opening up choices around treatment and clinical trial participation.

• News

Pancake Day or Shrove Tuesday, which in 2025 falls on Tuesday 4 March, could be a great opportunity to fundraise for Retina UK, whilst having fun and eating lots of yummy pancakes!

Retina UK has a number of online support resources which we offer via social media.