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Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.

Our volunteers are highly valued members of the Retina UK team and their roles are essential to help support and enable people affected by inherited sight loss to live fulfilling lives.

• Impact Report
• Audio
• Written

Saturday 10 August, 1.00pm - 7.00pm - Come and join us for our second collaborative in-person event of 2024 when we return to The Bridge Hotel in Newcastle.

• Local peer support group

We’re all still buzzing from our recent conferences. We do hope you enjoyed them as much as we did. If you weren’t able to join us, then you can watch or listen to the recordings on our website.

• Look Forward
• Audio
• Written

Including a gift to Retina UK in your Will is an incredibly special way to help our vital work continue into the future.

Thursday 25 July 2024, 7.00pm - 8.00pm - via Zoom - Guest speakers, Sight & Sound, will be joining us to talk about the WeWalk Smart Cane 2.

• Local peer support group

The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Biotechnology company ProQR has announced encouraging results from its phase 1/2 clinical trial of an innovative treatment for sight loss caused by faults in a specific section of the USH2A gene.

• News

The BBC World Service has undertaken an investigation of unproven treatments for retinitis pigmentosa (RP) and has produced a documentary film, called Blind Faith, which is available on BBC iPlayer.

• News
• Retinitis pigmentosa

Celebrate the life of your loved one, by donating in their memory and help us fund more research and support, now.