Search

Fundraising for Retina UK means a lot to me - both my dad and my nephew have been affected by inherited sight-loss, and I've seen first-hand the incredible work this charity does.

• Case study - supporter
• Written

Retina UK has a number of online support resources which we offer via social media.

The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.

Our Board of Trustees is responsible for the strategic management of the organisation and delivery of our charitable objectives.

The FDA has given Ocugen permission to start their phase 3 gene therapy clinical trial for retinitis pigmentosa (RP).

• News
• Retinitis pigmentosa

Autosomal recessive inheritance means that the faulty gene is on an autosome (any chromosome other than the sex chromosomes) and that both copies need to be faulty to cause sight loss

Our Medical Advisory Board (MAB) advises our Board of Trustees in order that they can approve grants for research projects.

If you, or a close relative, are living with a genetic sight loss condition, there may be a chance that your children will inherit it.

Amar Latif is an adventurer, entrepreneur, TV presenter and public speaker. He became an Ambassador for Retina UK in 2020.

• Case study - Ambassador
• Written

Last year, with your help, we raised an incredible £53,752, which made great strides in helping our medical research recover from the pandemic.

• Podcast
• Audio