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In January 23-year-old Jake Ternent became the first person with an inherited sight loss condition to be treated in the UK with Luxturna (voretigene neparvovec) for Leber congenital amaurosis (LCA).

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• Leber congenital amaurosis (LCA)

There are many ongoing clinical and laboratory studies around the world, exploring innovative approaches to treating inherited sight loss.

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Retina UK is delighted to have awarded a new three-year research grant to Prof Majlinda Lako at Newcastle University for a project entitled: To establish AAV.PRPF31 gene augmentation in PRPF31-deficient RPE and photoreceptor cells and assess its efficacy in restoring RPE and photoreceptor function.

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• Retinitis pigmentosa

Our monthly e-Newsletter featuring the latest updates from Retina UK.

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Including a gift to Retina UK in your Will is an incredibly special way to help our vital work continue into the future.

Funding from Retina UK has allowed to team to explore the viability of gene therapy as a treatment for RP and related conditions, and build a pipeline of clinical trials.

Giving a regular monthly or quarterly donation of any amount is a wonderful way to help Retina UK support the inherited sight loss community.

Thursday 5 February 2026, 7.00pm - 8.00pm - via Zoom - Please come and join us for a Scotland region-wide meeting where we are delighted to introduce our new Glasgow Peer Support Group facilitator, Sarah Speed.

• Local Peer Support Group

February is Retinitis Pigmentosa Awareness Month and we'd love you to get involved to enhance the work of Retina UK, as we continue to support those who are living with retinitis pigmentosa and other inherited sight loss conditions.

Tribute to Retina UK founder Lynda Cantor MBE

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