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The following projects were being funded by Retina UK and have recently come to an end.

Prof Mariya Moosajee at Moorfields Eye Hospital has asked us to share the message below about the clinical trial she is running. This trial is for a treatment that targets a particular section of the USH2A gene.

• News
• Usher syndrome

Thursday 28 November, 7.00pm - 8.30pm - via Zoom - Are you a parent or carer of a child living with an inherited retinal dystrophy? If so, we invite you to our first Parent & Carer Peer Support Group meeting.

• Local peer support group

When we talk about gene therapy we are usually referring to use of a harmless virus, called a vector, to deliver a normal copy of a defective gene into the cells of the eye.

Do you want to win up to £25,000 and feel good about supporting people with inherited progressive sight loss?!

Biotechnology company ProQR has announced encouraging results from its early analysis of the phase 1/2 trial of QR-421a, an innovative approach to treating sight loss caused by mutations in a particular section of the USH2A gene.

• News
• Usher syndrome

Bhavini was diagnosed with RP in 1997 aged 17. The consultant who confirmed her diagnosis told her that “there was no cure or treatment and she should prepare to go blind".

• Case study - community
• Written

Our community are the reason we are able to continue supporting those with inherited sight-loss conditions through research and practical support.

We have created Discover Wellbeing to help people affected by inherited sight loss to develop an awareness of emotional wellbeing and the practical skills to adapt to life’s ups and downs.