Gene therapy treatment Luxturna accepted for use in Scotland
Retina UK is delighted that the Scottish Medicines Consortium (SMC) has accepted the gene therapy Luxturna (voretigene neparvovec) for ongoing use by the NHS in Scotland.
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x-linked inheritance
X-linked inheritance means that the faulty gene is located on the X chromosome, the larger of the two sex chromosomes.
Hope for the future
In this article, we hear Colin's story and the reasons why he has hope for the future.
Retina UK-funded discovery leads to $2.5 award for further research
A discovery made as part of research funded by Retina UK has led to a prestigious award of $2.5 million, enabling scientists to undertake more in-depth investigations and work towards a treatment for a particular type of retinitis pigmentosa.
Taking part in the 2021 Virtual London Marathon
Caryn talks about her experience taking part in the 2021 Virtual London Marathon.
Coming soon
Our Peer Support Groups are growing. Find out more about what's planned for the future.
Information for employers
If you are considering employing someone with inherited sight loss, or have an employee recently been diagnosed with the condition, you will need to take steps to ensure that you treat them fairly and that they can work safely and effectively.
A genetic diagnosis for RP can give rise to unexpected surprises
James Birtley is a Retina UK supporter and volunteer who is living with retinitis pigmentosa. He is also a scientist with a particular interest in the structure of proteins, the complex molecules that form the building blocks of our bodies.
Buckinghamshire Local Peer Support Group
Thursday 19 September, 11.00am - In-person - Please come and join us for a guided tour of the new 'Seeing Differently' exhibition at the MK Gallery.
E-Newsletter June 2024
Our monthly e-Newsletter featuring the latest updates from Retina UK.