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The BBC World Service has undertaken an investigation of unproven treatments for retinitis pigmentosa (RP) and has produced a documentary film, called Blind Faith, which is available on BBC iPlayer.
Prof John Marshall is the Frost Professor of Ophthalmology at the Institute of Ophthalmology at University College London.
Thank you to all those who completed our recent Sight Loss Survey – almost 700 of you took the time to share your experiences.
Ashley is currently the Vice President & Chief Financial Officer, International for Vertex Pharmaceuticals.
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Join Research Development Manager, Kate Arkell as she speaks to our latest research grantees about their projects.
Dr Rachel Taylor is part of the UK Inherited Retinal Dystrophy Consortium (UKIRDC) team at the University of Manchester.
As Luxturna reaches the clinic and other gene-specific therapies for inherited retinal disease get closer to the end of the development pipeline, it is becoming ever more important that affected families can access a genetic diagnosis, potentially opening up choices around treatment and clinical trial participation.
Hajrah Sarkar is a PhD student whose project is funded by Retina UK.
It was previously believed that female carriers of X-linked inherited retinal diseases (IRDs) like X-linked retinitis pigmentosa (RP and Choroideremia) remained unaffected by sight loss.
