Retina UK has launched a new online support group for parents and carers. We all know that being a parent or carer brings its challenges as well as its joys; add in a diagnosis of a progressive, inherited sight loss condition and those challenges can seem overwhelming!
Our group provides a fully inclusive, welcoming space to bring families together, to share experiences; hints; tips; coping strategies, and ideas to help you support your young person.
Knowing that you’re not alone on this journey, having the opportunity to meet and chat with other parents who genuinely understand, or simply to listen, can make so much difference.
We want to empower you; help you recognise and manage emotions that yourself and your child or young person may be experiencing.
So whether you are also living with the condition or not; our group will provide support and information, providing unique insight and guidance that you may find useful, as well as fostering a community in which members can share information with one another, from their own unique lived experience.
Register your interest
Please register your interest in attending this new group and, if possible, please indicate what time works best for you and your family.