Contact our Helpline

We are here for you whether you have a question about your condition, are looking for ways to cope with daily living situations, are seeking information about benefits, employment, education or anything else that may be of interest to you. We will be able to answer your question or signpost you to a relevant organisation that can.

Perhaps you just need a safe place to speak to someone who genuinely understands.  The helpline offers confidential support and gives the opportunity to discuss feelings or concerns with a trained volunteer who either lives with, or has a close family member with, inherited sight loss.

The Retina UK Telephone Helpline is open Monday to Friday from 9.00am to 5.00pm and from 5.00pm to 8.00pm on Tuesdays and Thursdays.  An answering service is in place at other times and messages left from within the UK will be returned as soon as possible. For people calling from outside of the UK, please leave your email address so we can get in touch.

Local rate call

Email helpline

You can also email the Retina UK Helpline at any time at Helpline@RetinaUK.org.uk. We aim to respond within 48 hours and your email will be treated in the strictest confidence.

The Retina UK Helpline service cannot provide medical diagnoses or counselling, and any information given is intended only as a guide. You should speak to your GP or consultant for any urgent medical queries.

Retina UK is a member of the Telephone Helplines Association and also provides access to LanguageLine for callers where English is their second language

We also offer a number of online support groups.

Outside of the UK

If you are calling the Helpline from outside of the UK the cost of the call will be at the local call rate as outlined by your country’s service provider. Please dial +44 300 111 4000 or email helpline@RetinaUK.org.uk.