Whether you are a professional looking for practical information for yourself, or practical or emotional support for your clients, online, by phone or face-to-face, we're here to help. All of our services are free to access and offered in a range of accessible formats.
We have created this new practical resource in response to requests from professionals supporting those living with inherited sight loss conditions and their families.
Our staff and community members with lived experience are happy to share their knowledge and expertise. We regularly deliver presentations for groups of healthcare professionals online and in person. Interested? Email services@RetinaUK.org.uk,
The aim of these pages is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.
We have created Discover Wellbeing to help people affected by inherited sight loss to develop an awareness of emotional wellbeing and the practical skills to adapt to life’s ups and downs.
The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.
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Our Retina UK Talk & support service (formerly Telephone Befriending Service) links people who may be feeling isolated or lonely with a trained volunteer for regular contact.
We are currently funding a range of exciting projects and programmes, all of which aim to enhance our understanding of inherited sight loss, and inform the development of treatments for the estimated two million people affected worldwide.
Sign up to receive our information RetinaUK.org.uk/get-involved/mailing-list/, email info@RetinaUK.org.uk or call our friendly team on 01280 821334.
