Refsum syndrome
Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.
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Bardet-Biedl syndrome (BBS)
Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.
Achromatopsia
Achromatopsia is a rare hereditary vision disorder affecting approximately 1 in 30,000 newborn babies.
Pattern dystrophy
Pattern dystrophy is an umbrella term for a group of retinal conditions. It is characterized by various patterns of pigment deposition within the macula.
Big Give Christmas Challenge 2025
During our 50th anniversary year, double your donations to Retina UK for one week only - at no extra cost to you!
Gyrate atrophy of the choroid and retina
Gyrate atrophy of the choroid and retina, shortened to gyrate atrophy, is an inherited disorder of protein metabolism characterised by progressive vision loss.
5K A Day In May 2026
May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.
Spring Skydive 2026
During our 50th anniversary year, take to the skies with an epic spring skydive for Retina UK!
TCS London Marathon MyWay 2026 (Virtual Event)
Do you want to take part in the world-famous TCS London Marathon, from the comfort of your own city? Take part virtually on race day and join #TeamRetinaUK in 2026!
Sheffield 10K 2024
Is 2024 the year that you join #TeamRetinaUK & take on the Sheffield 10K?