Joining the research effort
Many research studies could not take place without the participation of people living with inherited sight loss.
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Many research studies could not take place without the participation of people living with inherited sight loss.
Cataracts and macular oedema are both associated with inherited sight loss and may respond to treatment.
Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.
Our sight loss survey highlighted that you have a real appetite to get involved in representing the inherited sight loss community through activities like focus groups, surveys and research projects via the Retina UK Lived Experience Panel.
Come together for Retina UK Day on Thursday, 8 October 2026 and help us raise awareness and funds for those who are living with inherited sight loss.
Tuesday 10 November 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitator Stuart and the group for their latest online meeting where we are delighted to welcome our guest speaker Anita Davies, Sight Loss Engagement Manager at WCB.
Tuesday 22 September 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitator Suzanne and the group for their latest online catch up where we are pleased to welcome our guest speaker Tricia Sail, winner of BBC's Race Across the World 2023.
Monday 12 October 2026, 7pm - 8pm - via Zoom - Please come and join facilitator James and the Berkshire group for their latest online social catch up.
Saturday 8 August 2026, 12.30pm - 6.30pm - In-person - Please come and join Rachael and the group at The Waldorf pub in Manchester for their latest social get together including guest speakers Katy Whitwell & Lisa Howell from the RNIB's ECLO service.
Saturday 12 September 2026, 1.00pm - 5.00pm - In-person - Come and join Kim, Annmarie and the Belfast Bumpers Group for their latest in-person meet up for lunch at Andhra Bhavan, South Indian restaurant, in Belfast.