Involving our community
Our community is informed and knowledgeable about current research projects into the cause(s) of and treatments for these conditions.
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Sirius clinical trial – Exon 13 mutation of USH2A
Prof Mariya Moosajee at Moorfields Eye Hospital has asked us to share the message below about the clinical trial she is running. This trial is for a treatment that targets a particular section of the USH2A gene.
National Peer Support Group
Thursday 16 July 2026, 7.00pm - 8.00pm - via Zoom - Please come and join us for our Summer meeting where we are delighted to welcome our guest speakers Bhavini Makwana and Eamonn Dunne, Policy & Campaigns Managers at Thomas Pocklington Trust.
Berkshire Local Peer Support Group
Saturday 25 July 2026, 12.30pm - 4.30pm - Via Zoom - Come and join facilitator James Birtley and the Berkshire group for their in-person Summer social catch up over lunch at Bill's restaurant in Reading.
‘Talking’ Tech Peer Support Group
Tuesday 14 July 2026, 7.00pm - 8.00pm - via Zoom - Please come and join Anna & Ellie for our latest meeting where we are delighted to welcome our guest speaker Ellis Ellis from Vision Aid who will be giving a live audible demo of some of their products.
‘Talking’ Travel Peer Support Group
Thursday 23 July 2026, 7.00pm - 8.00pm - via Zoom - Come and join facilitators Richard & Rachael for our latest meeting to hear from our guest speaker Laura Cross, Operations Manager for the Vision Rehabilitation Specialist team at Guide Dogs.
Young Adults Peer Support Group
Wednesday 22 July 2026, 7.00pm - 8.30pm - via Zoom - Come and join Martik and the group for our latest Young Adults online social catch up.
New Chair of Trustees
We are delighted to welcome Kathy Evans as our new Chair of Trustees.
Women’s Peer Support Group
Tuesday 28 July 2026, 7.00pm - 8.00pm - via Zoom - Please come and join Perm & Danielle for their latest meet up where we are delighted to welcome our inspirational guest speaker Emma Jayne Basudev who will be talking to us about mindfulness.
RP Awareness Month – Paul’s Story
During RP awareness month, Paul Bacon has shared how his diagnosis has impacted his life and shared messages about how non visually impaired people can support those living with inherited sight loss. To learn more about inherited sight loss please take the time to read Paul's story.