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Saturday 28 March 2026, 1.00pm - 7.00pm - In-person - Come and join Colin and the group at the Tyneside Irish Centre for their first in-person event of 2026.

• Local Peer Support Group

In recent years there has, understandably, been a lot of excitement around cutting-edge therapies that target the specific genetic faults underlying inherited sight loss.

• News

Sepul Bio begins clinical trial of ultevursen for USH2A-associated RP

• News
• Retinitis pigmentosa

We are proud to work collaboratively with a number of corporate partners to enable our community to live fulfilled lives today as well as supporting the pharmaceutical industry in their mission to develop potential new treatments.

Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.

Our monthly e-Newsletter featuring the latest updates from Retina UK.

• e-Newsletter
• Audio
• Written

Our monthly e-Newsletter featuring the latest updates from Retina UK.

• e-Newsletter
• Audio
• Written

Colin was born in Dumfries and now lives near Glasgow. He is living with Usher syndrome, a dual sensory loss condition affecting his eyes and his hearing. He and his wife, Lyn, both have guide dogs: Jumble and Yozi.

• Case study - Ambassador
• Written

We’re all still buzzing from our recent conferences. We do hope you enjoyed them as much as we did. If you weren’t able to join us, then you can watch or listen to the recordings on our website.

• Look Forward
• Audio
• Written

Your generous support allows Retina UK to fund the work of leading scientists who are increasing understanding of inherited sight loss and moving us closer to treatments.

• News