Bardet-Biedl syndrome (BBS)
Bardet-Biedl syndrome (BBS) is an inherited, rare condition which impacts many parts of the body including the retina.
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Edinburgh Local Peer Support Group
Thursday 19 September, 11.00am - 1.00pm - In-person - Come and join us at the Princess Alexandra Eye Pavilion for a special focus group with Dr. Roly Megaw.
Buckinghamshire Local Peer Support Group
Thursday 19 September, 11.00am - In-person - Please come and join us for a guided tour of the new 'Seeing Differently' exhibition at the MK Gallery.
Tyne & Wear Local Peer Support Group
Saturday 12 October, 1.00pm - 7.00pm - *Rescheduled from 10 August* Come and join us for our second collaborative in-person event of 2024 with Northern Alliance VIP's when we return to The Bridge Hotel in Newcastle.
Information and support services
Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.
Manchester Local Peer Support Group
Saturday 28 September 2024, 5pm - In-person meet up for food and drinks at the Pendulum Hotel Garden Bar & Restaurant following on from our Annual Conference.
Belfast Local Peer Support Group
Tuesday 24 September, 7.00pm - 8.00pm - via Zoom - Come and join the Belfast Bumpers Group for an online catch up where we will be talking about volunteering for Retina UK.
Grant from The National Lottery Community Fund
We regularly make applications for grants to fund our information and support projects and have recently been successful in securing £12,000 from The National Lottery Community Fund.
Glasgow Local Peer Support Group
Wednesday 2 October, 11.00am - 1.00pm - In-person meet up at Visibility Scotland with guest speaker Graeme Marden from Sight and Sound Technology.