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Bhavini was diagnosed with RP in 1997 aged 17. The consultant who confirmed her diagnosis told her that “there was no cure or treatment and she should prepare to go blind".

• Case study - community
• Written

Researchers who received funding from Retina UK have carried out experimental gene therapy that is reported to have led to ‘life changing improvements’ to sight for four children with inherited sight loss.

• News
• Leber congenital amaurosis (LCA)

Imagine, if you can, evading capture from an elite team of hunters for 21 days when you’re blind! Ste and his co-fugitive, Chris, did just that in the new series of Hunted (Channel 4) which starts on Sunday 12 October.

• Story
• Retinitis pigmentosa

The following questions are often asked by people contacting Retina UK.

The latest podcast from Retina UK.

• Podcast
• Audio

Mark your special day, whilst fundraising for people with inherited sight loss.

The aim of these pages is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.

A new approach to treating inherited sight loss

• News

Did you join either of our Conferences this year? You can read about them inside this edition of Look Forward. We’ve had some fantastic feedback from our delegates so if you weren’t able to attend, you can watch or listen to the recordings from the day on our website.

• Look Forward
• Audio
• Written

Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

• e-Newsletter
• Audio
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