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Little boy looking at camera and smiling while sitting on chair at the ophthalmologist

Our manifesto

Retina UK are committed to improving the lives of people affected by inherited retinal dystrophies (IRDs).

Living outside of the UK?

At Retina UK we get many queries from those overseas affected by inherited retinal dystrophies (IRDs). Understandably, many want to know about research and how they can get involved. Retina UK does not organise trials or directly recruit participants.

About Unlock Genetics

The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.