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Alstrom syndrome is an inherited condition which affects many body systems.

The Retina UK Professionals’ Conference is aimed at anyone who works with our community in a professional capacity. Free to attend.

• Conferences
• Online

The Retina UK Annual Conference will be held in September. You can join the Conference in-person or online. Free to attend.

• Conferences
• Online

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

• Look Forward
• Audio
• Written

With a carnival atmosphere and the passion and spirit of the runners. this is a race like no other. Expect inspiring sights, iconic landmarks and incredible support all along the route. Join #TeamRetinaUK and experience it yourself!

• Running
• Birmingham

This race is the Midlands’ biggest annual running event, with thousands of Brummie runners taking to the streets every year to challenge themselves and raise money for charity. Could you run as part of #TeamRetinaUK in 2026?

• Running
• Birmingham

Saturday 25 July, 12.00pm - 4.00pm - In-person - Please come and join facilitator Perm Bhachu and the group for their latest in-person social catch up over lunch at The Old House at Home pub in Harborne.

• Local Peer Support Group

Our young adults got to grips with white water rafting recently, building confidence and resilience while having fun.

• Look Forward
• Audio
• Written

Thank you to our fabulous 5K a Day in May supporters who raised more than £8,000 this year.

• Look Forward
• Audio
• Written