Bardet-Biedl syndrome (BBS)
Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.
Search
Search results
Achromatopsia
Achromatopsia is a rare hereditary vision disorder affecting approximately 1 in 30,000 newborn babies.
Pattern dystrophy
Pattern dystrophy is an umbrella term for a group of retinal conditions. It is characterized by various patterns of pigment deposition within the macula.
Jump In July 2026
Face your fears and support Retina UK with a charity skydive this summer!
Gyrate atrophy of the choroid and retina
Gyrate atrophy of the choroid and retina, shortened to gyrate atrophy, is an inherited disorder of protein metabolism characterised by progressive vision loss.
Halloween Skydive 2026
Are you ready to sign up for a spooky skydive and face your fears for Retina UK?
5K A Day In May 2026
May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.
Big Give Christmas Challenge 2025
WE HAVE REACHED OUR TARGET! Thank you everyone for your incredible support!
TCS London Marathon MyWay 2026 (Virtual Event)
Do you want to take part in the world-famous TCS London Marathon, from the comfort of your own city? Take part virtually on race day and join #TeamRetinaUK in 2026!
Charles Bonnet syndrome (CBS)
Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).