Resources

Simon talks about his experience of genetic testing and counselling.

Martin started volunteering for Retina UK in 2014 after retiring as a Chartered Civil Engineer.

My name is Mark Baxter and from an early age I was diagnosed with a deteriorating retinal eye condition called retinitis pigmentosa or RP for short, which will slowly lead to blindness.

Emily Kearney is mum to four boys, aged four to 13, two of whom are living with an inherited sight loss condition.

Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

Bhavini was diagnosed with RP in 1997 aged 17. The consultant who confirmed her diagnosis told her that “there was no cure or treatment and she should prepare to go blind".