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Retina UK Sight Loss Survey 2025 Findings from our survey of over 600 people living with inherited sight loss. June 2025

Every experience counts: Insights from our sight loss survey

A huge thank you to everyone who completed our 2025 sight loss survey. This year we received over 600 responses. It follows similar surveys in 2019 and 2022 which led directly to the introduction of our Unlock Genetics and Discover Wellbeing resources, as well as shaping our work with the professional community who support people with inherited sight loss.

Little boy looking at camera and smiling while sitting on chair at the ophthalmologist

Our manifesto

Retina UK are committed to improving the lives of people affected by inherited retinal dystrophies (IRDs).

About Retina UK

Retina UK is a charity supporting people affected by inherited sight loss and investing in medical research to help make their challenges a thing of the past.

Discover Wellbeing wordcloud on a dark blue background

Discover Wellbeing

We have created Discover Wellbeing to help people affected by inherited sight loss to develop an awareness of emotional wellbeing and the practical skills to adapt to life’s ups and downs.

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Fundraising FAQs

Fancy fundraising for Retina UK? Here’s a few pointers to help get you started.