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Discover Wellbeing feedback form

We hope that you’ve found our Discover Wellbeing resource helpful and that this understanding, together with the tools and activities, are something that you will be able to use on an ongoing basis.

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Unlock Genetics

The aim of these pages is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.

About inherited sight loss

Many inherited sight loss conditions occur when cells in the retina, which is the light-sensitive region at the back of the eye, deteriorate in an unpredictable way. These conditions are often referred to as inherited retinal dystrophies.

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Genetic counselling

Genetic counsellors are specially trained healthcare professionals with extensive scientific knowledge who spend time talking to families living with inherited conditions.