Search

The latest research news from Retina UK.

• News
• Retinitis pigmentosa

Tribute to Retina UK founder Lynda Cantor MBE

• News

Since the publication of this newsletter our founder and honorary president Lynda Cantor MBE has passed away. We are all deeply saddened by this news.

• Look Forward
• Audio
• Written

The latest research news from Retina UK.

• News
• Retinitis pigmentosa

Retina UK are committed to improving the lives of people affected by inherited retinal dystrophies (IRDs).

At Retina UK we get many queries from those overseas affected by inherited retinal dystrophies (IRDs). Understandably, many want to know about research and how they can get involved. Retina UK does not organise trials or directly recruit participants.

Beacon Therapeutics has announced positive results from its phase 2/3 VISTA trial of laru-zova, an experimental gene therapy for X-linked retinitis pigmentosa (XLRP). The findings mark a significant step forward for a condition that currently has no approved treatments.

• News
• Retinitis pigmentosa

Jenny Dewing is a postdoctoral researcher working on a Retina UK-funded project with Dr Arjuna Ratnayaka at the University of Southampton.

• Case study - research
• Written

Many inherited sight loss conditions occur when cells in the retina, which is the light-sensitive region at the back of the eye, deteriorate in an unpredictable way. These conditions are often referred to as inherited retinal dystrophies.

The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.