News

Largest meeting of families with Usher syndrome

Over 70 people gathered in Birmingham for the largest meeting of families living with Usher syndrome in the UK.  Retina UK and Sense supported Usher Kids UK to hold its …

Retina UK AGM

The Retina UK Annual General Meeting (AGM) will take place at 4.30pm on Saturday 28 September. All full members are entitled to attend, speak and vote at the AGM, which …

Retina UK publishes unique insight into the experiences of people with inherited retinal conditions

National sight loss charity Retina UK has published its unique insight into the experiences of those living inherited retinal conditions. Almost 1,000 people completed a survey earlier this year to …

Southampton researchers embark on clinical trial for Stargardt disease

Researchers in Southampton are recruiting people living with Stargardt disease for the clinical trial of a new drug called Remofuscin that could limit the sight loss associated with this condition. …

Research in the news (April – June 2019)

There have been some exciting research developments from around the world in the last few weeks. Here are two stories that we have already shared via Facebook and Twitter. Calming …

Luxturna update

We are aware that there has been some recent publicity about the first American child to receive the new gene therapy Luxturna after its approval by the US Food & …

Research reveals challenges faced by working age people with degenerative sight loss

A ground-breaking research project led by national sight loss charity Retina UK has revealed the many challenges faced by people of working age with degenerative sight loss. The unique Working …

London Marathon 2019

Twenty seven inspiring people arrived in Greenwich to take on the iconic Virgin Money London Marathon for Retina UK on Sunday 27 April. Together they raised more than £50,000 for …

‘Encouraging’ early stage results from stem cell therapy trial

‘Encouraging’ early stage results have been reported from an ongoing clinical trial for a stem cell therapy for retinitis pigmentosa. Retina UK has welcomed the news, while stressing ‘cautious optimism’ …

Research Study for the IRD Counts Consortium

We are excited to be able to let you know that there is an opportunity to take part in a research study for the IRD COUNTS consortium. The consortium is …

Research in the news (February/March 2019)

There have been some exciting research developments from around the world in the last few weeks. Here are some stories from our colleagues at other organisations, which we have already …

Please share your experiences and views with us

Retina UK has launched a major survey to help ensure the charity’s future plans are rooted in the real-life experiences, views and aspirations of people in the UK living with …