Beware of online adverts about treatments
The Retina UK community is sometimes targeted by adverts online or in social media, offering invasive treatments for inherited sight loss. Those selling the treatments are often outside of the …
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Exciting developments for new treatment research
Update 6 January 2022 Towards the end of 2021, jCyte announced additional findings from the phase 2 trial that help to clarify the circumstances in which the treatment has the …
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Joint statement: Charities call on Government to make benefits and employment support fit for purpose for people with sight loss
As a coalition of sight loss charities, we are calling on the Government to make the benefit system and employment support fit for purpose for blind and partially sighted people. …
jCyte update
In spring 2021, the US company jCyte announced detailed results from their successful phase 2b clinical trial of jCell, a stem cell-based treatment for RP. What is jCell? jCell is …
Research brings hope for the future
“All the promising research makes you feel like there is light at the end of that very dark tunnel after all.” So said an attendee of Retina UK’s recent Annual …
Optogenetics
The BBC covered a story on Monday 24 May about optogenetics partially restoring the sight of a man living with retinitis pigmentosa in France. This is an area of research …
Unlock Genetics on RNIB Connect Radio
Our Director of Development, Paula McGrath, recently appeared on RNIB Connect to talk about our new Unlock Genetics resource. You can listen to the show online here:
Amar Latif ‘delighted’ to be an ambassador for Retina UK
We are proud to announce that Amar Latif – adventurer, entrepreneur, TV presenter and public speaker – is to join Retina UK as a volunteer ambassador. In 2004 he launched …
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New website aims to increase understanding of genetic testing and counselling in inherited sight loss community
High quality information on genetic testing and counselling for families affected by inherited sight loss is now available in one place thanks to the launch of an innovative new website, …
Retina UK AGM – rescheduled time
Following the death of His Royal Highness The Prince Philip, Duke of Edinburgh and the announcement of his funeral arrangements, Retina UK’s Board of Trustees has changed the time of …
Study of substances in blood suggests choroideremia is not just an isolated eye disease
Choroideremia is a rare genetic condition resulting in progressive sight loss in men. Young boys suffer from difficulty with their night vision, followed by loss of their peripheral visual field …
