News

Latest update from ReNeuron stem cell trial

ReNeuron has announced an encouraging update on the progress of its Phase 1/2 trial of a stem cell-based therapy for retinitis pigmentosa, describing the most recent results as a “clear …

Recognition for Retina UK volunteer at Helplines Partnerships Awards

Congratulations and a huge well done to Elizabeth Baio who was awarded 3rd place in the Volunteer of the Year awards at the Helplines Partnership Conference on Wednesday 6 November. …

Worksop’s Got Talent 2019

More than 700 people came together for an evening of entertainment and fundraising for Retina UK at Worksop’s Got Talent 2019. The fourth event of its kind, Worksop’s Got Talent …

Retina UK Tandem Cycle Challenge 2019

On 11 October, a group arrived in Whitley Bay, eagerly anticipating the weekend’s adventure. They had come together to take part in the Retina UK Tandem Cycle Challenge, a 100 …

Informative and positive first Professionals’ Conference from Retina UK

Overwhelming positive feedback has been received from the 180 delegates who joined us for our first Professionals’ Conference. The education, health and social-care professionals who attended the event on Friday …

Press release: Retina UK publishes unique insight into the experiences of people with inherited retinal conditions

Evidence of the real-life experiences, challenges and expectations of almost 1,000 people affected by inherited sight loss conditions have been published by national sight loss charity Retina UK. The charity …

Study reveals impact of inherited sight loss on wellbeing and productivity

The findings of a pilot study into the burden of Inherited Retinal Disease (IRD) on the wellbeing and productivity of those affected have today been announced at EURetina in Paris. …

Press release: NICE approves first treatment on the NHS for an inherited retinal dystrophy

Today the National Institute for Health and Care Excellence (NICE) has recommended  Luxturna (voretigene neparvovec) for use in the NHS in England, making it the first available treatment for an …

NICE approves first treatment on the NHS for an inherited retinal dystrophy

Today the National Institute for Health and Care Excellence (NICE) has recommended  Luxturna (voretigene neparvovec) for use in the NHS in England, making it the first available treatment for an …

ProQR Announces Clearance of IND to Start Clinical Trial

ProQR Therapeutics announced on Monday 12 August that the US Food and Drug Administration (FDA) has cleared the Investigational New Drug (IND) application for QR-1123, which is the first investigational medicine to …

Awaiting funding decision for Luxturna

In the last issue of Look Forward, we reported that the gene therapy Luxturna had won European regulatory approval for the treatment of a particular type of inherited sight loss. …

Hope to Seaview 2019

Thank you to Retina UK Trustee Colin McArthur, his wife Linda and everyone who took part or donated to Hope to Seaview on the Isle of Wight on 9 June. …