Press release: Retina UK publishes unique insight into the experiences of people with inherited retinal conditions
Evidence of the real-life experiences, challenges and expectations of almost 1,000 people affected by inherited sight loss conditions have been published by national sight loss charity Retina UK. The charity …
Study reveals impact of inherited sight loss on wellbeing and productivity
The findings of a pilot study into the burden of Inherited Retinal Disease (IRD) on the wellbeing and productivity of those affected have today been announced at EURetina in Paris. …
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Press release: NICE approves first treatment on the NHS for an inherited retinal dystrophy
Today the National Institute for Health and Care Excellence (NICE) has recommended Luxturna (voretigene neparvovec) for use in the NHS in England, making it the first available treatment for an …
NICE approves first treatment on the NHS for an inherited retinal dystrophy
Today the National Institute for Health and Care Excellence (NICE) has recommended Luxturna (voretigene neparvovec) for use in the NHS in England, making it the first available treatment for an …
Continue reading "NICE approves first treatment on the NHS for an inherited retinal dystrophy"
ProQR Announces Clearance of IND to Start Clinical Trial
ProQR Therapeutics announced on Monday 12 August that the US Food and Drug Administration (FDA) has cleared the Investigational New Drug (IND) application for QR-1123, which is the first investigational medicine to …
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Awaiting funding decision for Luxturna
In the last issue of Look Forward, we reported that the gene therapy Luxturna had won European regulatory approval for the treatment of a particular type of inherited sight loss. …
Hope to Seaview 2019
Thank you to Retina UK Trustee Colin McArthur, his wife Linda and everyone who took part or donated to Hope to Seaview on the Isle of Wight on 9 June. …
Largest meeting of families with Usher syndrome
Over 70 people gathered in Birmingham for the largest meeting of families living with Usher syndrome in the UK. Retina UK and Sense supported Usher Kids UK to hold its …
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Retina UK AGM
The Retina UK Annual General Meeting (AGM) will take place at 4.30pm on Saturday 28 September. All full members are entitled to attend, speak and vote at the AGM, which …
Retina UK publishes unique insight into the experiences of people with inherited retinal conditions
National sight loss charity Retina UK has published its unique insight into the experiences of those living inherited retinal conditions. Almost 1,000 people completed a survey earlier this year to …
Southampton researchers embark on clinical trial for Stargardt disease
Researchers in Southampton are recruiting people living with Stargardt disease for the clinical trial of a new drug called Remofuscin that could limit the sight loss associated with this condition. …
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Research in the news (April – June 2019)
There have been some exciting research developments from around the world in the last few weeks. Here are two stories that we have already shared via Facebook and Twitter. Calming …