Retina UK AGM – rescheduled time
Following the death of His Royal Highness The Prince Philip, Duke of Edinburgh and the announcement of his funeral arrangements, Retina UK’s Board of Trustees has changed the time of …
Study of substances in blood suggests choroideremia is not just an isolated eye disease
Choroideremia is a rare genetic condition resulting in progressive sight loss in men. Young boys suffer from difficulty with their night vision, followed by loss of their peripheral visual field …
Encouraging results from ProQR USH2A clinical trial
Biotechnology company ProQR has announced encouraging results from its phase 1/2 clinical trial of an innovative treatment for sight loss caused by faults in a specific section of the USH2A …
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Taking on the bank!
Lockdown may have put the brakes on Euroglaze’s fundraising campaign for Retina UK initially, but the team at the Barnsley based Rehau fabricator are now on a roll once again. …
Notice of the forthcoming Retina UK AGM – April 2021
Following the death of His Royal Highness The Prince Philip, Duke of Edinburgh and the announcement of his funeral arrangements, Retina UK’s Board of Trustees has changed the time of …
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Tell us about your favourite book
Reading is a joy which we know that many of our community enjoy, particularly now; the weather is miserable and we’re not supposed to go out, other than for essentials. …
ProQR makes progress with potential treatment for LCA
Despite the challenges of the pandemic, researchers and pharmaceutical companies are still making progress towards delivering new treatments for inherited sight loss. Biotechnology company ProQR Therapeutics has announced that it …
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Useful links during Covid-19 pandemic
Originally published March 2020 The following list of useful links have been compiled by the team at Retina UK to provide information and support for our community. The list is …
Volunteers needed to test new memory stick pilot
We have been told by many members of our community that they no longer have a CD player and that the devices they now use have a USB slot for …
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New mechanism of disease discovered for Retinitis Pigmentosa by researchers at UCL Institute of Ophthalmology and Moorfields Eye Hospital
The team have found the cause of disease in the first ever family tree drawn up at Moorfields Eye Hospital over 35 years ago, which had remained unsolved until now. …
Participants needed for Charles Bonnet syndrome (CBS) survey
Researchers at Moorfields Eye Hospital are conducting a short 5-15 minute survey about how the COVID-19 lockdown has affected people with Charles Bonnet syndrome (CBS). Responses to the survey will …
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ProQR clinical trial for Leber’s Congenital Amourosis (LCA) 10
Biopharmaceutical company ProQR is conducting a Phase 2/3 clinical trial (Illuminate) to measure the safety and effectiveness of RNA therapy, Sepofarsen which aims to treat Leber’s Congenital Amourosis (LCA) …
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