Other children in the family

The diagnosis of inherited sight loss in one child can lead to concerns for their siblings. Parents may decide to have their other children tested for inherited sight loss, or a consultant may suggest it. In some cases however, due to the inheritance type, this may not be necessary. Your consultant can advise whether others in the family should consider an eye examination.

The wellbeing of siblings of the diagnosed child should be considered too, even if they are unaffected by the condition. They may feel concern for their brother or sister, have questions or concerns about whether they might be affected by the condition themselves or, in some cases, feel left out by the attention their sibling is receiving.

Talking about the condition as a family is helpful, as is being open about the impact this may have on certain aspects of family life, and adjustments which might have to be made.