Trusts and Foundations

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Inherited sight loss: a life-changing diagnosis

Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed. IRDs cause cells in the retina, the light-sensitive region at the back of the eye, to deteriorate in an unpredictable way, leaving those affected not knowing in what way or at what pace their field of vision will decline. More than 270 genes have so far been found to cause IRDs, and conditions include retinitis pigmentosa, Stargardt disease, Usher syndrome, Leber Congenital Amaurosis, and many more. In 2019 the first treatment for one type of IRD became available on the NHS, but there is still so much work to do to ensure everyone affected by inherited sight loss can access viable treatments.

Retina UK is the only UK charity working solely for people affected by inherited sight loss. If helping empower people living with a sight loss condition and driving forward progress in research is important to you, please consider supporting our work.

Your opportunity to make a difference

In addition to accepting unrestricted donations and grants and those towards pioneering medical research, we are happy to accept donations towards a number of specific areas of our work, including: our Helpline, Peer Support Groups, and the UK-Inherited Retinal Dystrophy Consortium.

If you work or volunteer for a Trust or Foundation who may be able to help, please get in touch.

Dedicated support

Our Trusts and Major Gifts Officer will be pleased to work with you to ensure your charitable aims and reporting requirements are met throughout. We would be pleased to provide regular updates on how you are helping to make a difference to the lives of thousands of people affected by IRDs throughout the UK. You may also receive invitations to events and opportunities to find our more about our work, such as by meeting with members of our Senior Leadership team, or by visiting a lab and seeing medical investigations in action.

Find out annual report and accounts and other charitable publications.

Thank you for caring

We would like to thank all the Charitable Trusts and Foundations who generously support our important work. With your help we can draw closer to our vision: of a world where everyone with inherited sight loss is able to live a fulfilling life.

If you would like further information or an informal discussion, please contact our friendly fundraising team on 01280 821334 or by email: