Statement from the Chairman

Posted on: Monday 16 April 2018

Important information about RP Fighting Blindness

I have written to our members to ask for their assistance in an important matter, the re-naming of our wonderful charity. This was done as we have become increasingly aware that the term RP is becoming less clinically relevant as science and understanding of inherited progressive sight loss increases.

This is proving problematic for us for two reasons. The first is that many newly diagnosed people do not discover us, meaning they do not access our extensive resources and information. The second is that our income is affected – without newly diagnosed people joining and supporting the charity we cannot grow our medical research and patient support programmes. We want to accelerate research and offer more support than ever before – we need your help to do this.

A new name has been developed, as part of a wider strategy review, with branding experts and in consultation with various key figures in the charity including my fellow trustees, longstanding members, scientific researchers and younger supporters. This new name is Retina UK.

The name Retina UK was devised following an in-depth process exploring many different options. We consulted people from every area of our work and sought advice from branding and charity experts over the course of a year to ensure we developed a brand that reflected the very special work we do.

We wanted to be certain that we would have a name as relevant in the future as it is now. It aligns us with the wider global sight loss community, echoing messaging of our partner organisations around the world, including Retina International, of which we are a proud founding member.

Our proposed renaming is only one of a number of changes we’re working towards; we’re building a new website too and continue to develop our services and information functions.

Should you have any queries or thoughts about our name change, you can contact our Communications & PR Manager Thomas O’Neill on He will be more than happy to speak with you and answer any questions you might have.

I hope everyone is as excited as I am about our proposed changes. Our charity has a proud history, and I feel sure the next few years will be our most productive and rewarding yet.

On behalf of my fellow trustees and all the staff at RP Fighting Blindness, I thank you for your support in this important matter.

Don Grocott
Chair of the Board of Trustees