Unlock Genetics on RNIB Connect Radio
Our Director of Development, Paula McGrath, recently appeared on RNIB Connect to talk about our new Unlock Genetics resource. You can listen to the show online here:
Amar Latif ‘delighted’ to be an ambassador for Retina UK
We are proud to announce that Amar Latif – adventurer, entrepreneur, TV presenter and public speaker – is to join Retina UK as a volunteer ambassador. In 2004 he launched …
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New website aims to increase understanding of genetic testing and counselling in inherited sight loss community
High quality information on genetic testing and counselling for families affected by inherited sight loss is now available in one place thanks to the launch of an innovative new website, …
Retina UK AGM – rescheduled time
Following the death of His Royal Highness The Prince Philip, Duke of Edinburgh and the announcement of his funeral arrangements, Retina UK’s Board of Trustees has changed the time of …
Study of substances in blood suggests choroideremia is not just an isolated eye disease
Choroideremia is a rare genetic condition resulting in progressive sight loss in men. Young boys suffer from difficulty with their night vision, followed by loss of their peripheral visual field …
Encouraging results from ProQR USH2A clinical trial
Biotechnology company ProQR has announced encouraging results from its phase 1/2 clinical trial of an innovative treatment for sight loss caused by faults in a specific section of the USH2A …
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Taking on the bank!
Lockdown may have put the brakes on Euroglaze’s fundraising campaign for Retina UK initially, but the team at the Barnsley based Rehau fabricator are now on a roll once again. …
Notice of the forthcoming Retina UK AGM – April 2021
Following the death of His Royal Highness The Prince Philip, Duke of Edinburgh and the announcement of his funeral arrangements, Retina UK’s Board of Trustees has changed the time of …
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Tell us about your favourite book
Reading is a joy which we know that many of our community enjoy, particularly now; the weather is miserable and we’re not supposed to go out, other than for essentials. …
Useful links during Covid-19 pandemic
Originally published March 2020 The following list of useful links have been compiled by the team at Retina UK to provide information and support for our community. The list is …
Volunteers needed to test new memory stick pilot
We have been told by many members of our community that they no longer have a CD player and that the devices they now use have a USB slot for …
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New mechanism of disease discovered for Retinitis Pigmentosa by researchers at UCL Institute of Ophthalmology and Moorfields Eye Hospital
The team have found the cause of disease in the first ever family tree drawn up at Moorfields Eye Hospital over 35 years ago, which had remained unsolved until now. …
