Category: Press Releases

Press release: Retina UK publishes unique insight into the experiences of people with inherited retinal conditions

September 13, 2019

Evidence of the real-life experiences, challenges and expectations of almost 1,000 people affected by inherited sight loss conditions have been published by national sight loss charity Retina UK. The charity …

Press release: NICE approves first treatment on the NHS for an inherited retinal dystrophy

September 4, 2019

Today the National Institute for Health and Care Excellence (NICE) has recommended  Luxturna (voretigene neparvovec) for use in the NHS in England, making it the first available treatment for an …

Please share your experiences and views with us

March 18, 2019

Retina UK has launched a major survey to help ensure the charity’s future plans are rooted in the real-life experiences, views and aspirations of people in the UK living with …

RP Fighting Blindness rebrands to Retina UK

October 17, 2018

RP Fighting Blindness, the leading UK charity dedicated solely to working for people affected by inherited retinal conditions, has today rebranded to Retina UK. As well as a new name …

Inspirational artist becomes RP Fighting Blindness Ambassador

October 10, 2018

Victoria Claire, a professional artist in contemporary sculpture for more than 25 years, will be working with the charity to show that it is possible to lead a limitless life …

Glittering London Charity Dinner for childhood sight loss research

Eyes on the Future Gala Dinner to raise funds for treatment of Leber congenital amaurosis, a severe degenerative eye condition. The parents of a child affected by Leber congenital amaurosis …