Category: General news

Retina UK Ambassasor wins Venus Award for Inspirational Woman of the Year

Award winning business woman, entrepreneur and Retina UK ambassador Seema Flower recently won the award for the London 2018 Venus Award Inspirational Woman of the Year. At a ceremony that took place at the Waldorf Hilton, she received the award in recognition of her hard work and achievements over the years in inspiring others and …

Surfing with sight loss – fun and freedom

By Victoria Claire, Retina UK Ambassador Surfing was always something that appealed to me – I loved the idea of it, the culture, the fashion – when I was younger I often wore surf-style clothing. But when I was diagnosed with retinitis pigmentosa (RP) at the age of 19, I accepted that it was something …

Victor completes the Munich Marathon!

On 14th October, Victor took on the Munich Marathon for the Retina UK research fund. He completed the marathon in 4 hours 50 minutes, a fantastic achievement, especially as he only started running a year ago. He has described the freedom he felt by starting to run with a guide: “You cannot imagine the sensation …

Working Age Group Project Survey

You may be familiar with our ongoing Working Age Group Project, which aims to provide future employment services to working age people who are living with degenerative sight loss. This project is being led by RP Fighting Blindness, in partnership with sight loss charities Thomas Pocklington Trust, Visionary and RNIB. In order to develop these …

A global community united

An international community of families affected by one type of inherited sight loss came together in London on Saturday 15th September 2018 to share experiences, hear from experts and consider how to work together to drive research forward. Families affected by mutations in the RDH12 gene, which can cause the early onset retinal disorder Leber …

Usher syndrome Awareness Day – Saturday 15th September

Saturday 15th September is the fourth annual Usher syndrome Awareness Day – an opportunity for individuals, families and organisations around the globe to raise awareness of Usher syndrome, the importance of providing support for those affected and the need for research into potential treatments. We know that there are many families out there in the …

Inspirational artist becomes RP Fighting Blindness Ambassador

Victoria Claire, a professional artist in contemporary sculpture for more than 25 years, will be working with the charity to show that it is possible to lead a limitless life despite a diagnosis of inherited sight loss. Victoria Claire is the third Ambassador to join RP Fighting Blindness and will be bringing her inspirational approach …

Sensory Astronights event

Dr Mariya Moosajee and her team will be at the Science Museum on the night of the 4th of August for Sensory Astronights, teaching families about how the eye develops and its genetics. There will be animations and clay modelling of eyes plus lots of other workshops and fun activities! Sensory Astronights is a relaxed, …

Eyes on the Future Gala Dinner

A Fundraising Gala Dinner – Eyes on the Future – is planned for 10th October at The Park Lane Hotel in London. Featuring dynamic entertainment, a cocktail reception, three course meal and ‘dining in the dark’ experience, this event promises to be a fabulous evening. Individual places are £200, with a table for ten starting …

Facebook Giving

We are delighted to announce that RP Fighting Blindness is now set up for Facebook Charitable Giving Tools – This means that you can now support us by creating a fundraiser to raise money for yourself, a friend or a charity. Perhaps you would like to start a Birthday fundraiser to help celebrate the special …

The Big Half returns in 2019!

The Big Half Marathon will return to London on 10th March 2019. This year a team of 14 runners took on this brand new half marathon, based around the Big Festival. Following much of the London Marathon route in reverse, the course is great for runners looking to bear personal bests, beginners looking to run …

A statement from the Chair of the Board of Trustees, Don Grocott

On Wednesday we held an Extraordinary General Meeting to vote on whether to change the name of our charity from RP Fighting Blindness to Retina UK. This resolution was passed. Including those who nominated me as their proxy to vote on their behalf as I saw fit, we had 87% in favour of passing the …