Category: General news

Taking on the bank!

March 1, 2021

Lockdown may have put the brakes on Euroglaze’s fundraising campaign for Retina UK initially, but the team at the Barnsley based Rehau fabricator are now on a roll once again. …

Notice of the forthcoming Retina UK AGM – April 2021

January 21, 2021

Due to the Covid-19 pandemic our 2019 AGM was postponed with the agreement of the Charity Commission. This year the AGM will be held on Saturday, 17 April at 2.45pm: …

Tell us about your favourite book

January 20, 2021

Reading is a joy which we know that many of our community enjoy, particularly now; the weather is miserable and we’re not supposed to go out, other than for essentials. …

Useful links during Covid-19 pandemic

January 12, 2021

Originally published March 2020 The following list of useful links have been compiled by the team at Retina UK to provide information and support for our community. The list is …

Volunteers needed to test new memory stick pilot

October 14, 2020

We have been told by many members of our community that they no longer have a CD player and that the devices they now use have a USB slot for …

Participants needed for Charles Bonnet syndrome (CBS) survey

June 8, 2020

Researchers at Moorfields Eye Hospital are conducting a short 5-15 minute survey about how the COVID-19 lockdown has affected people with Charles Bonnet syndrome (CBS). Responses to the survey will …

ProQR clinical trial for Leber’s Congenital Amourosis (LCA) 10

May 27, 2020

  Biopharmaceutical company ProQR is conducting a Phase 2/3 clinical trial (Illuminate) to measure the safety and effectiveness of RNA therapy, Sepofarsen which aims to treat Leber’s Congenital Amourosis (LCA) …

We are here for you

April 20, 2020

We are all living in challenging times and this is causing uncertainty and anxiety for many in our community. In March we recorded a significant increase in demand for our …

Ask the expert

April 17, 2020

Would you like to speak with an expert who cares for lots of patients with inherited sight loss conditions and has a detailed knowledge of the field? Consultant Ophthalmologist Dr …

Positive early findings from ProQR trial of USH2A therapy

April 3, 2020

Biotechnology company ProQR has announced encouraging results from its early analysis of the phase 1/2 trial of QR-421a, an innovative approach to treating sight loss caused by mutations in a …

Retina UK COVID-19 response

March 17, 2020

During these uncertain times, the health and wellbeing of our community is our upmost priority at Retina UK. In light of Government guidance we have made the difficult decision to …