Category: General news

Recognition for Retina UK volunteer at Helplines Partnerships Awards

November 12, 2019

Congratulations and a huge well done to Elizabeth Baio who was awarded 3rd place in the Volunteer of the Year awards at the Helplines Partnership Conference on Wednesday 6 November. …

Worksop’s Got Talent 2019

November 6, 2019

More than 700 people came together for an evening of entertainment and fundraising for Retina UK at Worksop’s Got Talent 2019. The fourth event of its kind, Worksop’s Got Talent …

Retina UK Tandem Cycle Challenge 2019

October 29, 2019

On 11 October, a group arrived in Whitley Bay, eagerly anticipating the weekend’s adventure. They had come together to take part in the Retina UK Tandem Cycle Challenge, a 100 …

Informative and positive first Professionals’ Conference from Retina UK

October 2, 2019

Overwhelming positive feedback has been received from the 180 delegates who joined us for our first Professionals’ Conference. The education, health and social-care professionals who attended the event on Friday …

Study reveals impact of inherited sight loss on wellbeing and productivity

September 5, 2019

The findings of a pilot study into the burden of Inherited Retinal Disease (IRD) on the wellbeing and productivity of those affected have today been announced at EURetina in Paris. …

NICE approves first treatment on the NHS for an inherited retinal dystrophy

September 4, 2019

Today the National Institute for Health and Care Excellence (NICE) has recommended  Luxturna (voretigene neparvovec) for use in the NHS in England, making it the first available treatment for an …

Hope to Seaview 2019

August 14, 2019

Thank you to Retina UK Trustee Colin McArthur, his wife Linda and everyone who took part or donated to Hope to Seaview on the Isle of Wight on 9 June. …

Largest meeting of families with Usher syndrome

August 12, 2019

Over 70 people gathered in Birmingham for the largest meeting of families living with Usher syndrome in the UK.  Retina UK and Sense supported Usher Kids UK to hold its …

Retina UK AGM

July 26, 2019

The Retina UK Annual General Meeting (AGM) will take place at 4.30pm on Saturday 28 September. All full members are entitled to attend, speak and vote at the AGM, which …

Retina UK publishes unique insight into the experiences of people with inherited retinal conditions

July 24, 2019

National sight loss charity Retina UK has published its unique insight into the experiences of those living inherited retinal conditions. Almost 1,000 people completed a survey earlier this year to …

Southampton researchers embark on clinical trial for Stargardt disease

July 3, 2019

Researchers in Southampton are recruiting people living with Stargardt disease for the clinical trial of a new drug called Remofuscin that could limit the sight loss associated with this condition. …

Research reveals challenges faced by working age people with degenerative sight loss

May 8, 2019

A ground-breaking research project led by national sight loss charity Retina UK has revealed the many challenges faced by people of working age with degenerative sight loss. The unique Working …