Category: General news

Informative and positive first Professionals’ Conference from Retina UK

October 2, 2019

Overwhelming positive feedback has been received from the 180 delegates who joined us for our first Professionals’ Conference. The education, health and social-care professionals who attended the event on Friday …

Study reveals impact of inherited sight loss on wellbeing and productivity

September 5, 2019

The findings of a pilot study into the burden of Inherited Retinal Disease (IRD) on the wellbeing and productivity of those affected have today been announced at EURetina in Paris. …

NICE approves first treatment on the NHS for an inherited retinal dystrophy

September 4, 2019

Today the National Institute for Health and Care Excellence (NICE) has recommended  Luxturna (voretigene neparvovec) for use in the NHS in England, making it the first available treatment for an …

Hope to Seaview 2019

August 14, 2019

Thank you to Retina UK Trustee Colin McArthur, his wife Linda and everyone who took part or donated to Hope to Seaview on the Isle of Wight on 9 June. …

Largest meeting of families with Usher syndrome

August 12, 2019

Over 70 people gathered in Birmingham for the largest meeting of families living with Usher syndrome in the UK.  Retina UK and Sense supported Usher Kids UK to hold its …

Retina UK AGM

July 26, 2019

The Retina UK Annual General Meeting (AGM) will take place at 4.30pm on Saturday 28 September. All full members are entitled to attend, speak and vote at the AGM, which …

Retina UK publishes unique insight into the experiences of people with inherited retinal conditions

July 24, 2019

National sight loss charity Retina UK has published its unique insight into the experiences of those living inherited retinal conditions. Almost 1,000 people completed a survey earlier this year to …

Southampton researchers embark on clinical trial for Stargardt disease

July 3, 2019

Researchers in Southampton are recruiting people living with Stargardt disease for the clinical trial of a new drug called Remofuscin that could limit the sight loss associated with this condition. …

Research reveals challenges faced by working age people with degenerative sight loss

May 8, 2019

A ground-breaking research project led by national sight loss charity Retina UK has revealed the many challenges faced by people of working age with degenerative sight loss. The unique Working …

London Marathon 2019

May 3, 2019

Twenty seven inspiring people arrived in Greenwich to take on the iconic Virgin Money London Marathon for Retina UK on Sunday 27 April. Together they raised more than £50,000 for …

Please share your experiences and views with us

March 18, 2019

Retina UK has launched a major survey to help ensure the charity’s future plans are rooted in the real-life experiences, views and aspirations of people in the UK living with …

Inaugural North West Family Fun & Information Day

March 11, 2019

Retina UK joined forces with Henshaws; Royal Society for Blind Children and St Vincent’s School for the Blind to hold a family event in Liverpool on Sunday 10 March. Despite …