Author: Jane Russell

ProQR Announces Clearance of IND to Start Clinical Trial

August 14, 2019

ProQR Therapeutics announced on Monday 12 August that the US Food and Drug Administration (FDA) has cleared the Investigational New Drug (IND) application for QR-1123, which is the first investigational medicine to …

Awaiting funding decision for Luxturna

In the last issue of Look Forward, we reported that the gene therapy Luxturna had won European regulatory approval for the treatment of a particular type of inherited sight loss. …

Hope to Seaview 2019

Thank you to Retina UK Trustee Colin McArthur, his wife Linda and everyone who took part or donated to Hope to Seaview on the Isle of Wight on 9 June. …

Largest meeting of families with Usher syndrome

August 12, 2019

Over 70 people gathered in Birmingham for the largest meeting of families living with Usher syndrome in the UK.  Retina UK and Sense supported Usher Kids UK to hold its …

Retina UK AGM

July 26, 2019

The Retina UK Annual General Meeting (AGM) will take place at 4.30pm on Saturday 28 September. All full members are entitled to attend, speak and vote at the AGM, which …

Retina UK publishes unique insight into the experiences of people with inherited retinal conditions

July 24, 2019

National sight loss charity Retina UK has published its unique insight into the experiences of those living inherited retinal conditions. Almost 1,000 people completed a survey earlier this year to …

Southampton researchers embark on clinical trial for Stargardt disease

July 3, 2019

Researchers in Southampton are recruiting people living with Stargardt disease for the clinical trial of a new drug called Remofuscin that could limit the sight loss associated with this condition. …

Research in the news (April – June 2019)

July 1, 2019

There have been some exciting research developments from around the world in the last few weeks. Here are two stories that we have already shared via Facebook and Twitter. Calming …

Luxturna update

June 19, 2019

We are aware that there has been some recent publicity about the first American child to receive the new gene therapy Luxturna after its approval by the US Food & …

Research reveals challenges faced by working age people with degenerative sight loss

May 8, 2019

A ground-breaking research project led by national sight loss charity Retina UK has revealed the many challenges faced by people of working age with degenerative sight loss. The unique Working …

London Marathon 2019

May 3, 2019

Twenty seven inspiring people arrived in Greenwich to take on the iconic Virgin Money London Marathon for Retina UK on Sunday 27 April. Together they raised more than £50,000 for …

‘Encouraging’ early stage results from stem cell therapy trial

April 15, 2019

‘Encouraging’ early stage results have been reported from an ongoing clinical trial for a stem cell therapy for retinitis pigmentosa. Retina UK has welcomed the news, while stressing ‘cautious optimism’ …