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A male runner smiles as he holds his Marathon medal.

Take on a challenge

With your challenge, you’ll help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.

Look Forward – Spring 2025 – Issue 185

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

Members of the Berkshire local peer support group sitting around a table

Local peer support groups

Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.

The cover of the winter 2024 edition of Look Forward

Look Forward – Winter 2024 – Issue 184

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students. We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

Retina UK Knowledge-base: Cone-rod dystrophy

Cone-rod dystrophy

Cone-rod dystrophies are a group of inherited diseases that affect the photoreceptor (light sensing) cells that are responsible for capturing images from the visual field.

Retina UK Knowledge-base: Best disease

Best disease

Best disease, also known as Best vitelliform macular dystrophy (BVMD), is is an inherited eye condition associated with progressive degeneration of the macula and is a form of juvenile macular dystrophy.

Retina UK Knowledge-base: Stargardt disease

Stargardt disease

Stargardt disease is the most common form of juvenile macular dystrophy (or inherited degeneration).

Retina UK Knowledge-base: Refsum syndrome

Refsum syndrome

Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.